By bringing together efforts to improve knowledge on rare diseases and orphan drugs with support to the development of national and European policies in the field, RD-ACTION will ensure that there is an integrated, European approach to the challenges faced by the rare diseases community.
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Learn more about RD-ACTION Workpackages

Workpackage 1


Workpackage 2


Workpackage 3


Workpackage 6

Policy Development for Rare Diseases and Integration

Workpackage 5

Steering, maintaining and promoting the adoption of Orphacodes across MS

Workpackage 4

Orphanet, the European database for Rare Diseases

34 Beneficiaries

30 Collaborating stakeholders

40 Countries

8.3 M Euros budget

RD-ACTION in partner countries

Design & Création : Agence la nageuse