Summary of Rare Disease Activities in Spain*
(Full report to follow below)
*NB – The findings and conclusions in this report are those of the contributors and validating authorities, who are responsible for the contents; the findings and conclusions do not necessarily represent the views of the European Commission or national health authorities in Europe. Therefore, no statement in this report should be construed as an official position of the European Commission or a national health authority.
Information supplied by the Spanish SOA Data Contributing Committee:
- Competent National Authority – Pilar Soler Crespo
- Orphanet National Representative – Francesc Palau
- National Patient Alliance Representative – José Luis Plaza and Patricia Arias