Summary of Rare Disease Activities in The Netherlands*
(Full report accessible below)
*NB – The findings and conclusions in this report are those of the contributors and validating authorities, who are responsible for the contents; the findings and conclusions do not necessarily represent the views of the European Commission or national health authorities in Europe. Therefore, no statement in this report should be construed as an official position of the European Commission or a national health authority.
Information supplied by the Dutch SOA Data Contributing Committee:
- Competent National Authority – Paul S.B Boom
- Orphanet National Representative – Gertjan van Ommen
- National Patient Alliance Representative – Cor Oosterwijk