RD-ACTION : DATA AND POLICIES for rare diseases

  • RD-ACTION : DATA AND POLICIES for rare diseases

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RD-ACTION Workshop Co-organised with INNOVCare:

‘Creating a Sustainable Environment for Holistic & Innovative Care for Rare Diseases & Complex Conditions’

Practical Resources

  • Final Agenda for Workshop: Creating a Sustainable Environment for Holistic & Innovative Care for Rare Diseases & Complex Conditions
  • ‘Active’ Agenda ‘Creating a Sustainable Environment for Holistic & Innovative Care for Rare Diseases & Complex Conditions
  • Outline and Context for Workshop
  • Recording of Day 1 of the workshop
  • Participants List with contact information
  • Presentations Folder

 

 

Outputs

  • OrphaNews Editorial ‘European Initiatives unite to address Integrated and Holistic care needs for rare and complex conditions’ – 2oth April 2018 
  • Recap of Breakout Sessions

 

 

 

 

 

 

 

 

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