RD-ACTION : DATA AND POLICIES for rare diseases

  • RD-ACTION : DATA AND POLICIES for rare diseases

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Toolset for implementation of ORPHAcodes into Health Information Systems

1) Standard procedure and guide for coding with Orphacodes

2) Specifications and implementation manual for master file UPDATED

3) Master file for statistical reporting UPDATED

4) Recommendation for routine maintenance

5) Specifications for an integrated coding application with Orphacodes

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