Read RD-ACTION workshop outputs on virtual care within ERNs!

The latest RD-ACTION workshop, on the topic of ‘Exchanging data for virtual care in the framework of the operation of ERNs’ generated several outputs of interest to the rare disease community:

Via this dedicated page –  – one can find:

  • The PwP presentations
  • The full report of the workshop, with summaries of the informative presentations and active discussion sessions
  • A shorter, ‘highlights’ document featuring the key practices and principles highlighted in the workshop discussions

The discussions from the final session of this workshop will be a basis for the next RD-ACTION WP6 workshop on ‘Using standards and embedding good practices to promote interoperable data sharing in the ERN framework’