The 3rd EUROPLAN National Conference took place on 3 November 2017 in Madrid, Spain. FEDER – Rare Diseases Spain was the organiser.
FEDER identified three main priorities to be discussed at the conference:
- Centres, Services and Units of Reference (CSUR) and European Reference Networks (ERNs)
- Access to Diagnostics and Treatments
A “Development Committee” was established in May 2017 to assess and analyse the situation in Spain for these three priorities. The results of their work were delivered at the conference with a view to foster the strategy on Rare Diseases both at national and regional level (autonomous communities).
Each priority discussed was broken down into several sub-priorities. For instance, the Research priority included sub-priorities such as funding for research, publications, number of research groups, clinical trials…
Proposals and recommendations were made for each priority/sub-priority. The use of indicators for monitoring progress was emphasised.
Read more: EUROPLAN Conference Report
State of the Art Report on Rare Diseases / Spain: http://www.rd-action.eu/country/spain/