Summary of Rare Disease Activities in Romania*
(Full report accessible below)
*NB – The findings and conclusions in this report are those of the contributors and validating authorities, who are responsible for the contents; the findings and conclusions do not necessarily represent the views of the European Commission or national health authorities in Europe. Therefore, no statement in this report should be construed as an official position of the European Commission or a national health authority.
Information supplied by the Romanian SOA Data Contributing Committee:
- Competent National Authority – Emilia Severin
- Orphanet National Representative – Cristina Rusu
- National Patient Alliance Representative – Dorica Dan